iCARE Patients and Families
Patients and families are why we do this work and are involved in our research project in many ways. Some parents, youth and family members work with our research team to help make sure we are asking the right questions and doing the research in the best way we can. Others are participants who help us gather data by coming to appointments and filling out questionnaires.
We so appreciate all the time and dedication from every child, parent, caregiver and family member who makes it possible to do this research.
Our national group of participants (also called a cohort) is made up of people who have been diagnosed with type 2 diabetes before the age of 18 years old. If you or someone you know might be interested in joining our study please contact firstname.lastname@example.org or phone 204-789-3827.
The iCARE research study creates a newsletter in order to share updates, recent findings, and other exciting news related to the study. Click the newsletter button to view our most recent version.
Our Patient and Family Advisory Group (PAG)
The iCARE Patient and Family Advisory Group, or PAG for short, is a group of youth and adults who are passionate about type 2 diabetes. Our PAG helps us figure out what to research next as well as how to share information for people in healthcare and the community to understand more about the struggles of youth with this disease. The PAG meets every few months to give their feedback and ideas to the iCARE research team about what to study next and how to study it in a good way. Members of our PAG get compensation ($$) and connect with other youth and families affected by type 2 diabetes. You don't need to know about research to join. To try out a meeting or learn more contact Carrie Costello: email@example.com
"The advisory group is really critical to ensure that mental health is a component throughout. They give us a lot of feedback about the measures that we use to help us decide which ones we should be using and what's appropriate."
Dr. Allison Dart (co-investigator for iCARE)
A Tiktok video created by the youth in our PAG about living with type 2 diabetes
This book was written by teens and young adults living with type 2 diabetes (T2D) in Manitoba and Northern Ontario who are patient partners in the iCARE Study.
This book provides facts about type 2 diabetes and ways to help manage it.
This book shares the stories of young people who live with type 2 diabetes, and stories from their family members.
This book is a reminder that you are not alone.
Our PAG worked together to create a video on what it is like to live with Type 2 Diabetes.
Check out this interview on CTV that Shayna, one of our iCARE patient advisory group members did.
There are blog posts about our patient advisory group, from the perspective of one of the co-investigators on the team, Dr. Brandy Wicklow (@bwicklow1), from one of the caregiver representatives, Jackie, and also from one of the youth, Shayna. These posts are by Leanne Dunne - Knowledge Translation & Patient Engagement health researcher for @DEVOTION_MB. Click on the links below to view the 3 blog posts!