Patients and families are why we do this work and are involved in our research project in many ways. Some parents, youth and family members work with our research team to help make sure we are asking the right questions and doing the research in the best way we can. Others are participants who help us gather data by coming to appointments and filling out questionnaires. We so appreciate all the time and dedication from every child, parent, caregiver and family member who makes it possible to do this research.
