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Participant and Families


Participants and their families are at the core of why we do the work and are involved in our research project in many ways.  Some parents work with our research team to make sure we are asking the right questions and doing the research in the best way we can.  Others are participants who help us gather data by coming to appointments and filling out questionnaires.  

We appreciate all the time and dedication from every child, parent, caregiver, community and family member who helps us do this research.  

If you are interested in learning more about the study or would like to be involved with the study. Please click on the links below:

Our NextGen Parent Advisory Group (PAG)

Our advisory group is made up of parents who have children in the study and other community members who support families.  We work with the research team throughout all aspects of the study, from asking the right questions to sharing what we learn in the research project.  

 The PAG meets every few months to give their feedback and ideas to the Next Gen research team about what to study next and how to study it in a good way. Members of our PAG get compensation ($$) for their time. You don't need to know about research to join. Your lived experience helps research.  To try out a meeting or learn more contact Carrie Costello:

Next Generation Study Newsletter

The Next Generation research study creates a newsletter in order to share updates, recent findings, and other exciting news related to the study. Click the newsletter button to view our most recent version. 

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